- Description
Charlie Rose Brain Series 2 Episode 8: Parkinson's Disease and Huntington's Disease with Eric Kandel of Columbia University, Stanley Fahn of Columbia University, Allen Goorin of Harvard University, Anne B. Young of Harvard University, Stanley B. Prusiner of University of California, and former race car driver Sam Posey
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steelwalker 08/23/2012 05:13 PM Report
My girlfriends mother has Huntington and is in the final stages at the age of 79 and was diagnosed in 1988.
kolbj 08/23/2012 04:39 PM Report
Thank you for the time and effort to bring experts to the table so we may learn more about these debilitating neurological conditions. Many of the medical explanations go beyond the lay person's normal vocabulary, but over time and repeat exposure, most can be meaningful.
What struck me was the comfort of hearing dedicated professionals expressing - on some level - a bold commitment to tracking down and meeting head on, the body's own devious trickery.
This fervor stands in stark contrast to my medical experience when after 2 years of beginning symptoms (leg tremors and tiredness), my physician insisted repeatedly that depression was the diagnosis. Lacking symptoms or tests to substantiate depression, as neuro symptoms increased, I was forced to beg, beseech, and threaten to see another physician in my award-winning primary care practice located in a community known as having the medical mile.
This experience meant a substantial delay in diagnosis and treatment, which certainly was of great consequence to the onset of PD. I concluded that the recognized physician who could not see the obvious, was "PROFILING" as a diagnostic tool.
The purpose in telling my experience is to encourage physicians to become aware and humble before the menu of neurological diseases which are uncomfortably common. Send your patient to a neurologist, follow up on symptoms, and know what to look for. Don't allow your patient to beg to be helped for diseases that already emphasize the helplessness of advancing deterioration.
Fast Forward: the meds really do help !
JAK